Top all-time · #7941
Bertrand Might
Personal blog · bertrand.might.net/articleshealthscience
Bertrand Might's personal blog at bertrand.might.net covers health and science. Since 2020, 10 different Hacker News readers have linked it 16 times, most often “The Algorithm for Precision Medicine”. No feed was found, so read it on the site itself.
Too few sampled comments (9) to say how often HN recommends it.?
Why HN links it
HN readers link this site for the story of Bertrand Might, the first patient with NGLY1 deficiency, and his family's Algorithm for Precision Medicine and advice for rare-disease patients and researchers.
Summarised by Claude from a sample of 9 HN comments that link here. Each comment is marked recommending, critical or neutral (citing without judging); how this works.
Most-linked posts?
- The Algorithm for Precision Medicine4 people · 5 mentions · first linked 2021-12-07
- /3 people · 3 mentions · first linked 2023-01-27
What Hacker News says?
Nothing to feel bad about. Thank you for sharing that too. My son’s life changed my own in profound ways, and even though he died four years ago, he is still changing my life in profound ways. I am always grateful for the reminder and to reconnect with the purpose that his life gave to mine. That post also reminds me that while he was alive, I did the best I could for him under my abilities, and that’s all any paren…
Comment linking /
on “The Illustrated Guide to a PhD”Submitted Bertrand Might: Life, legacy and next steps as a story · 95 points
HN discussionI've been in your shoes, but for my son, who ended up being the first case ever discovered of his particular genetic disorder. I'm happy to help. I written down an Algorithm for Precision Medicine that abstracted the journey all the way from diagnosis to treatment: https://bertrand.might.net/articles/algorithm-for-precision-... My day job is now to help patients like your partner all day every day at the Precision M…
Comment linking /articles/algorithm-for-precision-medicine/
on “Ask HN: How to be my own genetic disease researcher for my partner?”Submitted Echoes of Bertrand as a story · 3 points
HN discussionFeel free to reach out. Happy to help. Also, I've put much of what I've learned online: https://bertrand.might.net/articles/algorithm-for-precision-...
Comment linking /articles/algorithm-for-precision-medicine/
on “Ask HN: How to raise funds for rare disease research?”Submitted Bertrand Might: Life, legacy and next steps as a story · 3 points
HN discussionHave you read their document [0] on how to navigate the process? [0] https://bertrand.might.net/articles/algorithm-for-precision-...
Comment linking /articles/algorithm-for-precision-medicine/
on “What Is miniKanren?”Submitted Life and Legacy of Bertrand “Buddy” Might: First Diagnosed NGLY1 Deficiency as a story · 2 points
HN discussionBertrand's father here. I'm humbled to see his page show up on HN. HN was one of the sites that first picked up Bertrand's story years ago and it played a big role is several of the events that followed, such as when he was confirmed to be the first and (then) only patient in the world with his ultra-rare genetic disorder. The subsequent explosion on social media led to the discovery of other patients; to an acceler…
Comment linking /articles/algorithm-for-precision-medicine/
on “Bertrand Might: Life, legacy and next steps”Submitted Accepting the unacceptable as a story · 1 points
HN discussionMatt.Might.net has had many submissions to HN [1]. Professor Might pivoted from CS to medicine on account of his family's success figuring out Bertrand Might's (their first-born son) medical problem. Further context for this link is provided in HN-moderator dang's comment on a 2018 submission about the family's efforts to improve diagnosis and treatment for rare diseases: https://news.ycombinator.com/item?id=1796257…
Comment linking /
on “Bertrand Might: Life, legacy and next steps”Submitted The Algorithm for Precision Medicine as a story · 1 points
HN discussionMatt.Might.net has had many submissions to HN [1]. Professor Might pivoted from CS to medicine on account of his family's success figuring out what was wrong with their first-born son, Bertrand Might. Further context for this link is provided in dang's comment on a 2018 submission about the family's efforts to improve diagnosis and treatment for rare diseases: https://news.ycombinator.com/item?id=17962575 I read Cri…
Comment linking /
on “Bertrand Might: Life, legacy and next steps”Submitted The Algorithm for Precision Medicine as a story · 1 points
HN discussionRelated: The journey of Bertrand, Matt Might’s son, who became the first patient ever diagnosed with NGLY1 deficiency – https://bertrand.might.net/
Comment linking /
on “Nobody Has My Condition but Me”I’m grateful to whoever posted this. Unfortunately it appears that Bertrand passed away in 2020 from septic shock, but he was able to develop much better after his diagnosis. There’s more information at https://bertrand.might.net/ for anyone curious.
Comment linking /
on “One of a Kind (2014)”
